It’s not a big deal for most families 

But for us to be able to go to the public pool and actually have fun with no incidents is such a huge blessing!  Furthermore,  I took both kids by myself.  

I seriously had thought our days of having fun as a family were over. …or at least on hold until Beauty got out of puberty.  

Today, though, we had a wonderful time together at the pool. Perhaps only parents of special needs kids can understand how overjoyed this makes me. 

The Attack on Men

Our men are under attack! T.V. shows, movies, pop culture….for years they have been changing what we expect of our men, fathers and husbands. Often seen as buffoons or clowns, or over-worked businessmen who have no time for their families. Now what decent men are left have to stand by while their wives and daughters share a bathroom with any male who claims to identify as a woman.It is a shame, really, but why is it happening?

I’m so stinkin’ proud!

I did not post much on Friday because we were busy as a family.

The highlight of the day concerns our daughter.  You may recall she is 12 and “special needs”. She has multiple diagnosis, all cognitive in nature. Physically she is healthy and strong-Praise the Lord-but her IQ was tested to be 55. In some ways, she is “further behind” than her 6-year-old brother. I use quotes because, while these labels are helpful in getting her the appropriate assistance, they do NOT define who she is as a cherished girl created by God. She faces many challenges and as both her mother and her home school teacher, I am challenged right along with her. The whole family is.

Anyway, one of her struggles is with sensory issues. On the one hand, she SEEKS deep pressure input and “hard work” (swimming, hanging from the monkey bars, shoveling are all good activities to help balance her nervous system), she also AVOIDS other stimuli such as loud crowds. A HUGE challenge we have is with her hair. Here is a picture from her 12th birthday:

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That long, curly hair is a battleground! She cannot stand for anyone to touch her head/hair. Trying to shampoo it and then comb out the tangles is a war I reserve only for Saturday nights (for church the next day). It stays a horrible tangled mess the rest of the week. She has never been to a salon because 1. In the past, we didn’t want to disturb the beautiful blonde curls (she used to let me fix it) and 2. We figured some battles are better left at home and not out in public……..UNTIL TODAY! When we got ready to leave to do some shopping this morning, her hair was quite tangled. Her dad coaxed her into letting me try to do something with it, but it was really bad. We had had enough. We told her it would be best if we let someone cut it, just a little. Once she realized we didn’t mean as short as her dad and brother’s, she agreed.

So, finally, at 12 years old, she had her first visit to the salon!

She LOVED having her hair shampooed (who doesn’t?) and was so patient and cooperative during the entire process. She kept asking if she could come back! The stylist was very nice and understanding as well.

Here is her new, “grown-up” hairstyle that she now doesn’t want us to touch because we will “mess it up”. Hee Hee

jan 29 2016

The stylist straightened it in hopes it would give us a couple of days without tangles. However, after tonight’s bath it was a little damp and the curls came back. It was super cute with the curls too! She seems very happy with it and I am hopeful she will once again allow me to comb and style it, since it won’t be so painful.

I am so stinkin’ proud of this kid!!!!

‘Refused’

“Refused the flu shot” is what was written in large, bold letters at the top of my daughter’s (I call her Beauty) medical record the other day.

We’ve been taking her to Cincinnati’s Children Hospital for her check-up evaluations and screenings. When the nurse called us back, and before weighing her, she asked if Beauty had the flu shot. I said no. She asked, “Do you want us to give her one?”. I said, “Um, no thanks”. It was while the nurse was measuring Beauty’s height that I glimpsed at her file and saw the nurse’s note.

Perhaps I am knit-picking, and I admit I have little trust in the pediatric medical field (at least in what I have use of them for-which is not an actual illness), but this note really rubbed me the wrong way. Maybe it was where I was freshly aggravated at reading those stories of parents losing their children because a hospital accused them of medical negligence.

Beauty is 10 and has never had the flu shot and has never had the flu. Children we know get the shot every fall and they also get the flu before “flu season” is up. I never get the flu shot. Our son, 4, has never had it. Hubs just got one, but that is because he accepted a position at the hospital-sponsored health club and had to. We are physically healthy. Beauty was enrolled in public school for one entire school year plus two months of another. Our family was the sickest during those months than we have ever been, though not with anything serious. Since I brought her back home, we have not been sick once all winter.

Honestly, a small note saying something like, “Flu shot offered. Parent opted out”, would have be sufficient. The large, black handwriting at the top of the form, and underlined, hit a nerve. When you also home school a special needs child, one learns to be wary, even if you do everything properly.